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Legal and Ethical Aspects of HIV-Related Research

  • Book
  • © 2002

Overview

Authors:
  1. Sana Loue

    1. Case Western Reserve University, Cleveland

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Table of contents (13 chapters)

  1. Front Matter

    Pages i-2
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  2. Prestudy Planning

    1. The Evolution of Protections for Research Participants

      Pages 5-12

    2. Governing Principles

      Pages 13-45

    3. Clinical Trials

      Pages 47-62

    4. Recruitment

      Pages 63-75

  3. Issues Arising during the Study

    1. Confidentiality

      Pages 79-117

    2. Potential Conflicts

      Pages 119-136

    3. Scientific Misconduct

      Pages 137-141

  4. Following the Study

    1. Participants and Records

      Pages 145-148

    2. Publication and Dissemination of Research Results

      Pages 149-153

  6. Back Matter

    Pages 195-218
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Keywords

About this book

The motivation and inspiration for this book come directly from expe- ences with clients during the years that I practiced HIV-related law at the Legal Aid Society of San Diego, Inc. The issues discussed in this work reflect issues that arose on a recurring basis with clients participating in HIV research studies, with investigators calling for guidance on the legal implications of particular aspects of their proposed studies, and with research institutions and health care facilities struggling to make sense of legal maneuvers aimed at obtaining the records of their HIV-infected patients. It is impossible to thank each of these persons individually for their provocative questions and their insights. The discussion of ethical and legal issues relating to the design of clinical trials reflects questions raised during discussions with Donald J. Slymen, Ph.D. Don was one of the first researchers, in my realm of experience, to pay close attention to ethical concerns, and I am greatly appreciative of his contribution to both my professional growth and the development of various scenarios discussed in this text. The portions of this text dealing with confidentiality are the result of many hours of thoughtful discussion and analysis with Penn Lerblance, J.D., now deceased and still missed. Penn and I often participated together as presenters of in-service training programs for health prof- sionals. Penn addressed discrimination, and I focused on confidentiality.

Authors and Affiliations

  • Case Western Reserve University, Cleveland

    Sana Loue

Bibliographic Information

  • Book Title: Legal and Ethical Aspects of HIV-Related Research

  • Authors: Sana Loue

  • DOI: https://doi.org/10.1007/b112396

  • Publisher: Springer New York, NY

  • eBook Packages: Springer Book Archive

  • Copyright Information: Springer Science+Business Media New York 2002

  • Hardcover ISBN: 978-0-306-45055-6Published: 31 August 1995

  • Softcover ISBN: 978-1-4757-8558-6Published: 24 March 2013

  • eBook ISBN: 978-0-306-46800-1Published: 24 November 2005

  • Edition Number: 1

  • Number of Pages: XIV, 218

  • Topics: Public Health, Epidemiology, Health Promotion and Disease Prevention, Social Sciences, general

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