Quality of Life Assessment: Key Issues in the 1990s

1. Front Matter

   Pages i-xvi

   PDF

2. Philosophies, Concepts and Key Instruments Involved in Assessing Quality of Life

   1. Front Matter

      Pages 1-1

      PDF

   2. The new era of quality of life assessment

      • J. Leighton Read

      Pages 3-10

   3. Assessing health-related quality of life for clinical decision-making

      • Donald L. Patrick, Pennifer Erickson

      Pages 11-63

   4. The Quality of Well-being Scale: rationale for a single quality of life index

      • Robert M. Kaplan, John P. Anderson, Theodore G. Ganiats

      Pages 65-94

   5. Development, testing, and use of the Sickness Impact Profile

      • Marilyn Bergner

      Pages 95-110

   6. The Nottingham Health Profile

      • James McEwen

      Pages 111-130

   7. The McMaster Health Index Questionnaire: an update

      • Larry W. Chambers

      Pages 131-149

   8. A health index and output measure

      • Rachel M. Rosser

      Pages 151-178

   9. The Index of Health-related Quality of Life (IHQL): a new tool for audit and cost-per-QALY analysis

      • Rachel Rosser, Richard Allison, Carole Butler, Michaela Cottee, Rosalind Rabin, Caroline Selai

      Pages 179-184

   10. A fifteen-dimensional measure of health-related quality of life (15D) and its applications

       • Harri Sintonen, Markku Pekurinen

       Pages 185-195

   11. The EuroQol© quality of life project

       • Rachel Rosser, Harri Sintonen

       Pages 197-199

   12. A WHO method for the assessment of health-related quality of life (WHOQOL)

       • Norman Sartorius

       Pages 201-207

   13. Indices versus profiles — advantages and disadvantages

       • Monika Bullinger

       Pages 209-220

   14. The On-Line Guide to Quality-of-Life Assessment (OLGA): resource for selecting quality of life assessments

       • Pennifer Erickson, Jeffrey Scott

       Pages 221-232

3. Assessing Quality of Life in Major Disease Areas

   1. Front Matter

      Pages 233-233

      PDF

   2. Measuring the quality of life of patients with cancer

      • Peter Selby

      Pages 235-267

   3. Measuring the quality of life of patients with rheumatoid arthritis

      • Richard A. Deyo

      Pages 269-287

   4. Measuring the quality of life of patients with Parkinson’s disease

      • J. S. Shindler, R. Brown, P. Welburn, J. D. Parkes

      Pages 289-300

   5. Measurement of health-related quality of life in asthma and chronic obstructive airways disease

      • Paul W. Jones

      Pages 301-320

It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus­ sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters.

• assessment
• cancer
• health
• quality of life
• research

• Welsh School of Pharmacy, University of Wales College, Cardiff, UK

  Stuart R. Walker

• University College and Middlesex School of Medicine, London University, London, UK

  Rachel M. Rosser

Policies and ethics